Life with a chronic illness:An open letter

Hello loves,

Today’s post is part rant and part informative (I hope)

A little backstory…..For context…

When I was 19 I started to feel unwell, I was constantly sick, felt tired all the time and picked up every bug going round, it took the doctors 8months to finally find out what was wrong with me, I had an underactive thyroid, thankfully it’s treatable with a daily tablet but it will never get better, it’s a life long illness. For a while the tablets seemed to lessen my symptoms, then I got glandular fever, which caused my immune system to shut down I was bed bound for nearly 3 months. I now have underactive thyroid, fatigue and autoimmune deficiency, I am in pain daily, I’m tired I get ill at the drop of a hat I have to be careful what I eat as thyroid can lead to a form of IBS so certain foods cause me to be sick! I have no anti bodies so even a cold can leave me bed bound as my body doesn’t know how to fight off the infection I’m more susceptible to sinusitis and ear nose and throat infections it’s just bloody hard work somedays I won’t lie!

Back story complete here’s the rant part…

Today I feel rough. A worse day shall we call it I don’t remember feeling ‘well’ but I don’t complain (often) I’m running on 4 1/2 hours sleep there’s so many bugs going round at work that I’m frightened I’ll catch I’ve got a huge headache and just feel poop….I was meant to go out today but cancelled I was also meant to go out last night but had to cancel now thankfully my friends and family are understanding of my situation and know that I am regrettably flaky!! However today I told my husband I wasn’t going out and he responds with ‘but you have to’ yes even my husband whose been with me for 10years can sometimes forget what it’s like!! So I’m here to say that regardless of whether you have an illness you don’t HAVE to do anything. I said this to him with a scowl on my face because I was annoyed! I didn’t have to go out it would’ve been nice to go out but I didn’t have to what I wanted to do was rest because this week is going to be one hectic week and I already know that by Sunday my body will be ready to give up!! I’m not articulating my thoughts well at all I’m too tired I just wanted to get the message across that all you ever have to do….Is what you darn well want to, and today I wanted to lounge around in my PJs and have a ‘sick’ day! That’s ok, you should never apologise or feel obligated to be anything other than yourself! It’s not selfish or rude or unsociable to focus on yourself once in a while so just remember that my loves

Rant over! Xx

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5 thoughts on “Life with a chronic illness:An open letter

  1. msomran says:

    I can absolutely relate. Only yesterday I posted a blog about my illness too out of frustration of how no one can just understand it and leave me alone. You’re strong xx

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